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Contents »

ConectAR: Collaborative network of patients with asthma and carers actively involved in health research. A protocol for patient and public involvement


A. Sá-Sousa anasasousa@gmail.com1,2*, T. Rodrigues2,3*, S. Fernandes4, A. M. Santos5, I. Garcia-Lema1,2, E. D. Costa6, C. Chaves Loureiro7,8, J. L. Boechat2,9, A. Baía Reis10, D. Figueiredo2,11, J. A. Fonseca1,2,12, A. L. Neves1,2,13, C. Jácome1,2

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Doi
10.23822/EurAnnACI.1764-1489.249

Summary
Patients and Public Involvement in every stage of the patient-centred health research cycle is the key to the development of innovative solutions with an impact on patients' care. This protocol describes the development of ConectAR, a network to promote the involvement of patients with asthma and their carers in the health research cycle. This protocol comprehends 4 tasks: 1) define the mission, vision, governance and activities of the network through focus groups; 2) establish the communication strategy and tools; 3) test the feasibility of the network in a Delphi study on the research priorities for asthma in Portugal; and 4) coordination and dissemination activities. This network will improve research by ensuring that patients and carers have an active role in the co-creation of impactful solutions for asthma.

Key words
Patient and public involvement; citizen science; patient-centered health research; asthma; Chronic Respiratory Diseases. 

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